AIM has confirmed that on Saturday 12th August, Someone Like Me CF is organizing a workshop for parents and peers of cystic fibrosis patients.
There will be a parent workshop on Saturday from 10:30am to 2:30pm: ‘I find myself, I empower myself’. The entity stated that its goal is “to allow CF companions to begin to get to know each other”.
The coaches coaching this time are: César Graciani, Luciana Masrconi and Constanza Bursa.
The place of appointment is the Rosedal Room of Maraán Suite & Towers (Address: Alameda de la Federación 698, Paraná).
Let’s remember that People Like Me CF is an entity whose goal is to advance knowledge about cystic fibrosis, accompany patients, spread knowledge about the pathology, and raise awareness of the importance of organ donation.
For more information visit the Facebook fan page: Someone Like Me Fq
What is CF
CF is an “autosomal recessive” congenital disorder; autonomous meaning that both males and females can have it.
Cystic fibrosis has a variety of symptoms. The most common are:
Salt loss through excessive sweating (dehydration)
Frequent respiratory infections (bronchopneumonia, pneumonia, bronchiolitis)
chronic diarrhea or greasy stools
Inability to gain weight despite a good appetite despite a thin appearance
Different degrees of malnutrition, slightly bulging abdomen
chronic cough
shortness of breath during physical activity
chronic sinusitis
Cystic fibrosis is a non-communicable genetic disease that remains incurable until now, even thanks to advances in science and physicians and the various approved drug treatments that most patients share.