written in Local he
Monterey.- Today is World Cystic Fibrosis Day, a complex and still unknown disease that can lead to death if not treated promptly and correctly.
An example of fibrosis is David Antolín, received a lung transplant in April 2021 after what he described as the most severe relapse of his illness.
Due to ignorance about the disease and lack of treatments in Mexico, the surgery was performed in the United States and was supported by boxer Saúl “Canelo” Alvarez because the cost of treating the disease is quite high .
Cystic fibrosis is a hereditary, chronic, incurable congenital disease. Mainly affecting the respiratory and digestive systems, one of the most effective drugs currently available is Trikafta, which costs up to $30,000 per month.
Antolin said that in order to continue his recovery, he and his family hope to settle in a neighboring country where treatment is easier and where he also started his own sportswear business, Sportant.
“We are already looking for a way to be able to stay there, and in Mexico there are no facilities to treat people like me with something as complicated as a transplant, and we would rather continue our process in the United States than throw away years of hard work. ,”He said.
Another problem with ignorance about cystic fibrosis is the lack of early detection, Because there are cases like 25-year-old Greta Elizondo, who was diagnosed with pneumonia, asthma and other respiratory illnesses at age 11.
“I’ve had reflux since I was a kid, third degree malnutrition, which is a symptom, recurring infections, but luckily all of that was covered by insurance for me, but they diagnosed me with asthma, pneumonia, bronchitis Etc., all of this is for prevention, but that’s not my diagnosis,” he said.
She doesn’t yet have full treatment, and because she was laid off during the pandemic on so-called fibrosis precautions, there’s little bureaucratic process to get her medication from the Social Security Administration again.
One of the best drugs is inhaled tobramycin, followed by Trikafta, which Mariana Proa, 21, also diagnosed with cystic fibrosis, uses daily but costs P38,000 a month .
Despite requests at the local and federal levels, andI included Trikafta among the free medicines services provided by the hospital but have not yet been realized because In Mexico it is not recognized by Cofepris, But according to Mariana, it’s so effective that it’s “almost like there’s no fibrosis.”